Glossary

Here are some key terms used throughout the Policy. When it's particularly important to understand what they mean, we've highlighted them on the pages throughout this website.

Term Definition
Agency The Policy uses the term ‘agency’ to refer to government agencies, non-government organisations (NGOs), and other providers of services.
Aggregated Information The term aggregated information can mean two different things, depending on how it's used. It can mean summarising information by adding it together into statistics, for example by counting the number of service users accessing a service over a period of time. Alternatively, it can mean larger collections of information produced by taking multiple sources of information and putting them all together (adding or 'aggregating' them together). Aggregated information can be personal (still contains people's identifiers in some form), or non-personal.
Consent vs. choice 'Consent' is given when a person voluntarily agrees to something based on a good understanding of the consequences. However, consent can have specific definitions in fields such as medicine, research and law. For this reason, the Policy uses a plainer word – ‘choice’ – and focuses (in part) on the processes that help give people choices and enable them to act on those choices.
De-identified This means information that could identify an individual, like names, dates of birth, and addresses, has been removed. Numbers that can be used to identify people, like IRD and NHI numbers, are removed or encrypted (replaced with another number).
Design Group A range of people who attended the original engagement hui were invited to contribute to the design phase of the work during October and November 2018. This included NGOs, government agencies, and other providers. Design workshops were held in Wellington, Auckland and Christchurch, to identify how best to honour the engagement feedback, and to define early content for the draft Policy.
Frontline Refers to activities that take place in direct contact, often face-to-face, with service users.
Funding agency Agencies that fund the delivery of social sector services by other organisations. The typical example in the context of the Policy is NGOs being funded by government agencies to deliver a range of services. 
Information A broad term that encompasses data (such as facts and statistics), the outputs of analytical work and research, reports and studies, case notes, and narrative information. Includes both quantitative information, as well as qualitative information, and may be either personal, or non-personal.
Insights Non-personal information, including data and data sets, analysis, qualitative or quantitative information, statistics, research, reports or studies, that may support improved decision making.
IPP Information Privacy Principle. Refers to one of the 12 key privacy principles in the Privacy Act 1993.
Layered privacy statement A privacy statement that a person can choose to view at a number of different levels, starting with a summary, and offering greater detail for people who would like to see it. 
NGO Non-government organisation. In the context of the Policy, NGO refers to social sector organisations established to support people facing challenges across the core areas covered by the Policy, such as welfare, health, education, justice, child wellbeing, housing, and disability support services. Examples include the Salvation Army, Barnardos, and Presbyterian Support. There are thousands of such organisations in New Zealand.
Non-personal information Non-personal information is information that does not identify people and that can't be used, even if combined with other information, to identify individual people.
OPC The Office of the Privacy Commissioner. See www.privacy.org.nz to understand more about OPC in general, and many aspects of privacy.
Personal information Personal information has the meaning in the Privacy Act, which is information about identifiable individuals. It includes information relating to a death that is maintained by the Registrar-General under the Births, Death, Marriages, and Relationships Registration Act 1995 or any former Act (as defined in section 2 of the Births, Deaths, Marriages, and Relationships Registration Act 1995).
Privacy statement A privacy statement, or privacy notice, lets service users know, among other things, what information an agency is collecting from them and what it will be used for. Typically, a privacy statement will be on a website, and/or in printed form, and is one of a variety of tools to support the recommendations in the Transparency and Choice Guideline
Research Research, in the context of this Policy, has a broad meaning - studying a topic, analysing a topic, exploring, or researching.
Service delivery organisation An agency responsible for direct delivery of services to service users. This includes agencies like MSD and ACC, and organisations like the Salvation Army, but does not include agencies like the Social Wellbeing Agency that don't deliver services directly to service users.
Service provider Another term for 'Service delivery organisation'.
Service user A member of the public who applies for, receives or otherwise uses services delivered by service providers.
Social sector The social sector comprises government agencies, non-governmental organisations (NGOs) and other providers of services to support New Zealanders' wellbeing across a range of areas including welfare, education, health, justice, child wellbeing, housing and disability support services. 
Working Group The Data Protection and Use Policy working group is made up of representatives from NGOs, government agencies, and client advocates/representatives. They have provided guidance to the work from the start and continue to be actively involved.